Realising that you know yourself and your body better than anyone else, you can use information and resources – from people to the internet or the printed word – to help make decisions about your treatment that suit you and your priorities.
When you have complex health issues, it can help to set one main treatment goal to work towards. For example, you could have a goal to be able to move around your home safely as your first priority, then move on to another goal, such as reducing your need for pain relief.
In other words, you are choosing to manage your health in a way that suits your individual priorities or circumstances.
Self-advocacy means you are an active participant in your own healthcare, working in partnership with doctors, allied health professionals, even other patients.
Seeing the relationship with your health care team as a partnership helps make you part of decision-making and the management of your diagnosis and treatment.
Learn about your medical condition(s) and look for information from a range of perspectives and sources. This can include:
- recording symptoms and family histories,
- talking with health care professionals and other patients,
- using the Internet and libraries for researching relevant diseases and treatment options, and
- keeping an up-to-date medical history.
You can find out how to get helpful information on our Finding good health information and Questions to ask pages.
It is harder for you to manage a health condition if you don’t understand:
- instructions or advice from a doctor,
- why your doctor has asked you to have a test or scan,
- the reasons why you need to take your medication a certain way, or
- how to make changes to your diet or lifestyle that will help improve your health.
You may spend more money on health care or end up in the hospital more often.
Some question it might help to ask are:
- Can you please explain that again for me?
- Is there somewhere I can get more information on my condition from?
- Is there anything else I can do that will help?
- Are there any other treatment options?
- Are there any side effects? How common are they for someone like me?
- How will I know if the treatment is working?
- How long until I will be feeling better?
You can find out more on our Questions to Ask page.
We sometimes read about major medical errors, but millions of “smaller” mistakes take place every day. These can include being given the wrong medications, being given them at the wrong time, or acquiring infections in hospitals.
If you know what your medications are, what they are for, and how you are supposed to take them, you can help make sure that you keep taking them the right way when you are in hospital.
For more information on staying safe in hospital, have a look at our Tips for Safer Health Care page.
The best way to improve the health services that you use is to have a say in how the services are run. You could be a consumer representative on a committee, a volunteer or a patient advocate.
If you are interested in becoming a consumer representative, you can find out more on the Health Care Consumers’ Association website and explore what options there are for shaping health services in the ACT. HCCA runs consumer representative training and can let you know when a representative role is available. To find out more, contact the HCCA office on 6230 7800 or at [email protected] .
Health services value feedback, both good and bad. It helps them to know what they are doing well, what needs improving and what might be concerning for consumers.
Each service will have a different method for consumer feedback, but staff will be able to help you or you can check on their website.
You can visit the ACT Health website for information about giving feedback on services in the ACT.
If you are unhappy about the care you have received, you can find out more about how to make a complaint here.
: Everyone in Australia who is seeking or receiving health care has certain rights.
You have a right to:
- Access – access to healthcare services that meet your needs
- Safety – receive safe and high-quality care
- Respect – be treated with dignity and respect
- Partnership – be included in decisions and choices about your care
- Information – be informed about services, treatment options and costs in a clear and open way
- Privacy – have your privacy respected and the information you provide kept confidential
- Feedback – comment on care and have your concerns addressed.
You can find a copy of the Australian Charter of Healthcare Rights here. For more detailed information on your healthcare rights, go to the Australian Commission on Safety and Quality in Health Care website.