Informed Consent for Consumers

Informed Consent for Consumers

What does Informed Consent mean?

Informed consent in health care means you agree for a health care professional to provide you with treatment and care, including any tests, medicines, or procedures.

Sometimes informed consent means signing a form, such as when you are completing forms before an operation.  Sometimes it is just verbal, like when your doctor asks if he can examine you.  And sometimes it is “implied”, which means you have given your consent by going ahead with a recommended treatment, such as taking a prescribed medicine or undergoing a test.

Before you can give informed consent, you must be given clear information that is easy to understand about the treatment and what its impact might be on your health and lifestyle. This means you can make the right decisions about your healthcare for your situation.

Before you give your consent, make sure:

  • your doctor has explained all of the treatment options available to you,
  • that any risks, and the likelihood of those risks, are explained,
  • you understand the benefits,
  • you know what costs are involved,
  • you understand what the short and long term effects of the treatment might be,
  • you understand why the test or treatment is needed,
  • you understand what might happen if you choose to do nothing, and
  • you know about any ongoing changes you may need to make to your lifestyle.

If you are not sure or don’t understand at any stage, ask your doctor. Informed consent relies on good communication between you and your doctor.

It’s okay to ask your doctor for additional help to make an informed decision. You can ask for:

  • an interpreter for the language you feel most confident speaking,
  • information to be provided in different languages and formats (such as with pictures or through video),
  • a friend, family member, or support person to discuss your options with,
  • a second opinion, and
  • time to do further research.

You can find a list of questions to ask about your conditions, tests or treatments on the Questions to Ask page.

Informed Financial Consent

Informed financial consent means that a health provider must tell you what you may have to pay for medical services before you agree to have a test or treatment.

Informed financial consent should be included in discussions about what all your treatment options are as part of the informed consent process.

You should be provided with a clear breakdown of the full expected costs of medical treatment and services before you give consent – either implied or in writing.  This includes:

  • a schedule of fees,
  • any gaps between the fees and what your health insurance or Medicare will cover (out of pocket expenses), and
  • who will be invoicing you for services (e.g. the surgeon, the anaesthetist, the hospital, the pathology service, the pharmacy).

You should be able to compare the possible costs of different providers before deciding which specialist or service to use.

Good informed financial consent should include disclosure by providers (doctors, hospitals, medical practices) of any financial interests or benefit they will get on top of their fees in any aspect of your care, including financial interest in facilities or financial gain from the use of devices[i].

If a health care provider has a financial interest in the facility carrying out the medical care, this must be disclosed to the patient.

Resources:

The Australian Medical Association has produced a guide to Informed Financial Consent for consumers.

You can find out more about informed consent in Canberra Health Services on their website.

You can find out more about out-off-pocket expenses, hospital costs, what private insurance and Medicare cover, and how to work out if the fees your doctor or specialist charge are good value, on the Commonwealth Department of Health website.

The Commonwealth government also has a Medical Costs Finder which can help you understand the cost of common medical procedures provided by specialists in Australia.

Pathology Tests Explained has lots of resources to help you better understand any pathology tests you may need to have. They also have information on a wide range of health conditions and infectious diseases.

You can look up a test or a condition using their search feature to find out what it is, why it is tested, and how the sample will be collected. There are videos to watch to help explain the tests, as well as answers to common questions.

The Health Consumers Council of Western Australia has information on common treatments or procedures written by qualified and practicing consultant surgeons and physicians, with input from other relevant health professionals.

Health Direct has a wide range of resources to help you understand and use medicines safely. You can also search for a medicine by brand name or active ingredient, using the ‘Medicines’ search function. This can help you find out more about your current medicines or if you are considering a new medicine. Information about medicines includes:

  • important information about how your medicine works
  • a list of possible side effects, how serious these are and what to do if you experience them; and
  • other essential safety information about your medicine

References:

[i] Australian Medical Association, 2019, Informed Financial Consent– a Collaboration between doctors and patients https://ama.com.au/sites/default/files/documents/Informed-financial-consent-September%202020-v3.pdf

You might also be interested in…

Canberra Health Literacy Articles

Consent in ACT Health Research

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Australian Health Care Rights

Canberra Health Literacy Websites

Informed Consent on Healthdirect

Canberra Health Literacy

Informed Consent E-Learning

Last Updated on 11 November, 2026.